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3 years ago, the Japan Rett Syndrome database was established.
Now we have invited researchers, doctors and patient associations from overseas who are working in the leading studies and clinical trials to discuss together about future initiatives.
We hope that with these discussions we can help to develop future treatments for the Rett community in Japan.
- planning members -
Jeffrey Neul, M.D., Ph.D.
（Chief, Division of Child Neurology, and Professor and Vice Chair for Developmental Neurosciences, Department of Neurosciences, University of California, and Rady Children's Hospital San Diego, U.S.A.）
Leopold M.G. Curfs, M.D., Ph.D.
（Director Gouverneur Kremers Centrum and Rett Expertise Centre, Maastricht University Medical Centre, Maastricht, The Netherlands.）
Helen Leonard, MBChB, MPH
（Associate Professor and Principal Research Fellow, Telethon Kids Institute, Perth, Australia.）
In preparation
